Friday, April 30, 2010

Again having to say good by much too soon

His life was a surprise. First of all that he was conceived, and then, that he had Down's. I remember the night he was born and then seeing him for the first time the next day in the NICU. And I remember being struck by the impression that he was perfect and adorable. Ten tiny toes and fingers. A tiny little head.

He didn't speak per se but he got his point across. His Mom and Dad understood his nuances and made sure he was as comfortable and content as he could possibly be. He had an opinion and wasn't afraid to let them know. If his Mom laughed, he cried. If she cried, he laughed. If she was on the phone, he was anything but quiet. Invariably, if his Mom called while he was eating, he would "mmmmmm" throughout his meal, loudly. He was loved and so well cared for and he will be missed. Jesus opened the gates of Heaven and took him home this week. He has a body now that can move, and a voice that speaks. He doesn't hurt anymore. But we do. I know what it's like to have a hole in your heart that can't be filled and the pain can't be eased. I'm sorry my sister has to know that too.
His brother wrote a poem in his memory and part of what he said: "He's free from a world that somewhat held him captive. He's free to be at peace and not in a body with sickness. For now I bid you farewell."
God is too wise to be mistaken.
God is too good to be unkind.
So when you don't understand, when you don't see His plan.
When you can't trace His hand, trust His heart.
God had a plan for Jon and his time here and when He took him home. I don't understand and I hurt but I'll trust His heart.
I can't help but think that when Jon was surrounded by God's glory he didn't fall to his knees, he danced.


  1. So sorry to hear of your loss. How lovely to share such happy memories.
    His life may have been limited by his infirmities, but how happy it sounds to have been.

  2. Just passing by and saw your post. I am so sorry for your loss but so happy that he brought such happiness while here on earth. My daughters boy friends sister has had twins but the little girl Grace has brain damage - I hope you do not mind but I will point her in the direction of your blog because I know it will bring her encouragement and comfort. Her little boy is so healthy it just seems so unfair, but I do believe God has a plan and it is not our place to question that plan just to have faith in the unseen. God Bless you and your family.

  3. I almost missed this post Deb. I am so sorry your nephew was called home. You know I had a sister who was Downs. I wrote about her on one of her birthdays. I am convinced that God hand picks the parents for these beautiful people. Instead of being the burden the world sees, they are a blessing to whomever knows them. My sister has been gone for 10 years, yet she is never out of our hearts. There is not a day that goes by that something does not remind me of her. Blessings to your sister and the entire family.